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Patients unaware of NHS data collection plans - BBC, 14.2.2014

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Patients unaware of NHS data collection plans - BBC, 14.2.2014

Post by Tony Bennett on 15.02.14 10:14

http://www.bbc.co.uk/news/health-26187980

The very day that an NHS leaflet came round to the house* (in amongst the pizza delivery leaflets), I walked to the Dr's surgery and said 'I want to opt out'. It was about 2 weeks ago.

The Practice Manager said: "I'll make a note on your file".

I said: "I will require a letter from the practice confirming that my data will not under any circumstances be supplied to this computer database".

He said: "That's not necessary. But if you want me to write and confirm it, you'll have to provide me with a stamp".

As it happens, I carry a supply of stamps with me and gave him a 2nd class stamp, and addressed an envelope for reply.

Next morning I received a letter saying that my file had been clearly marked that my data would not be provided to this database.



[ * in a recent survey of the public, only 1 in 3 said they had received this leaflet ]

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Re: Patients unaware of NHS data collection plans - BBC, 14.2.2014

Post by mysterion on 15.02.14 10:25

This data is supposed to be anonamised. Heared recently that each patient record will include your postcode and date of birth. Cross reference that with tax records or NI records and they have likely got you.

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Re: Patients unaware of NHS data collection plans - BBC, 14.2.2014

Post by aquila on 15.02.14 10:33

There you have it Tony, the 'raising awareness' comments are classic bullshit.

I have this leaflet in front of me.

Big letters...Title Heading....

Better information means better care

Then some sort of weird blue/green/black visual which takes up more than a third of the front page of this brochure followed by smaller typeface.

The emboldened type is not mine it is how it appears on the front page of a leaflet dropped through the letterbox along with the rest of the junk mail that is received on a daily basis.

"This leaflet contains important information about your health records. (this is in much smaller font size).

You, and everyone who lives with you, should read this leaflet carefully. It is important that everyone knows how we share, protect and use information ab"out their health.
You have a choice."

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Re: Patients unaware of NHS data collection plans - BBC, 14.2.2014

Post by Tony Bennett on 15.02.14 11:17

@aquila wrote:There you have it Tony, the 'raising awareness' comments are classic bullshit.

I have this leaflet in front of me.

Big letters...Title Heading....

Better information means better care

Then some sort of weird blue/green/black visual which takes up more than a third of the front page of this brochure followed by smaller typeface.

The emboldened type is not mine it is how it appears on the front page of a leaflet dropped through the letterbox along with the rest of the junk mail that is received on a daily basis.

"This leaflet contains important information about your health records. (this is in much smaller font size).

You have a choice
Always read the small print first.

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Re: Patients unaware of NHS data collection plans - BBC, 14.2.2014

Post by aquila on 15.02.14 12:19

@Tony Bennett wrote:http://www.bbc.co.uk/news/health-26187980

The very day that an NHS leaflet came round to the house* (in amongst the pizza delivery leaflets), I walked to the Dr's surgery and said 'I want to opt out'. It was about 2 weeks ago.

The Practice Manager said: "I'll make a note on your file".

I said: "I will require a letter from the practice confirming that my data will not under any circumstances be supplied to this computer database".

He said: "That's not necessary. But if you want me to write and confirm it, you'll have to provide me with a stamp".

As it happens, I carry a supply of stamps with me and gave him a 2nd class stamp, and addressed an envelope for reply.

Next morning I received a letter saying that my file had been clearly marked that my data would not be provided to this database.



[ * in a recent survey of the public, only 1 in 3 said they had received this leaflet ]

____________________
snipped from the BBC link posted by Tony

Dr Geraint Lewis, NHS England's chief data officer, told the BBC: "We are hearing that certain patients have not received the leaflets, so we're working very closely with the Royal Mail."


I'm breathless (not) at the sheer tosh and lies.

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Re: Patients unaware of NHS data collection plans - BBC, 14.2.2014

Post by mysterion on 15.02.14 12:33

Data collection already happens if you go to hospital. I presume it is not anonamised, though could be wrong.

There is a further issue with regards patient records which all may not be aware. If you attend your GP for a health check anything they deem to be unhealthy according to the latest authodoxy will be noted on your records. The best example is cholesterol and blood pressure and will be prescribed medication. When you apply for holiday insurance you may well be penalised especially if the meds don`t agree with you and you stop taking them. In fact if you stop taking them, your cover may be blown altogether. 

If you want to know about your cholestorol or blood pressure, then I would use a pharmasist but don`t tell him/her your GP`s name if he asks.


This week, the threshold for statin prescription was lowered from 20%  to 10% chance of death in the next 10 years so 
more people will have black marks on their records.

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Re: Patients unaware of NHS data collection plans - BBC, 14.2.2014

Post by Julchen on 15.02.14 13:26

When we first moved here, a doctor advised me to go private if I didn't want my data to become government property.
I couldn't believe my ears and did go private(for other reasons).
About two years ago there was a late night program on LBC about having to opt out within a couple of days of the broadcast. We went to our medical centre (which I feel is very strange and utterly socialist, but I am not a great fan-if at all- of the NHS, anyway) and handed in our opting out forms which you could download at that time. The deputy practice manager hadn't even heard of any data collection plans. I insisted on handing in the forms and have him signing a receipt for it.
I know that the mere mention of my name can send the deputy manager (I call him "poor Mark") into a trauma.
Well, better he dislikes Germans rather than this strange country and especially the NHS getting their noses and fingers into my very personal records.
If there is a sentence that will send shivers down my spine it's "If you've got nothing to hide...."
Hello? It's not about hiding anything, it's about MY privacy, MY life, MY individuality. I am NOT a subject and not having being treated as an object.
(That's what poor Mark has to go through with me every time I turn up and insist on seeing the (deputy) manager)

I read about this new data hike in the Daily Fail a couple of days ago. Seems like it's time for "Get me the manager!!" again. big grin 

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Re: Patients unaware of NHS data collection plans - BBC, 14.2.2014

Post by aquila on 15.02.14 18:16

2,000 NHS patients’ records are lost every day with more than two million serious data breaches logged since the start of 2011

  • Records have been mistakenly sold on eBay or dropped in the street
  • Staff are also sending sensitive information to the wrong places
  • One NHS Trust said information had been thrown into bins

  • Fears they will fall into private hands - who will use them to make a profit


Read more: http://www.dailymail.co.uk/news/article-2559876/2-000-NHS-patients-records-lost-day-two-million-data-breaches-logged-start-2011.html#ixzz2tPpO9R51
Follow us: @MailOnline on Twitter | DailyMail on Facebook

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Re: Patients unaware of NHS data collection plans - BBC, 14.2.2014

Post by mysterion on 18.02.14 16:56

Just returned from GP Clinic. 2 other people in the queue for the receptionist to get "Opt out" forms. You can download one at: www.medconfidential.org/how-to-opt-out

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Re: Patients unaware of NHS data collection plans - BBC, 14.2.2014

Post by Tony Bennett on 18.02.14 18:16

http://www.bbc.co.uk/news/health-26239532

The whole scheme has been 'delayed' by six months.

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